So I watched this show last night on TLC. What a terrible story for this poor guy. He lived for 36 years with this horrible disease where his skin would bruise and fall off if he bumped it or scratched it. He had lost the use of his hands and feet because of the scarring, he had to be swathed in bandages to help protect his fragile skin. The amazing thing about this show was his outlook on life. He always had a joke at the ready, knew he was going to die and accepted it with grace and humility. Jonny Kennedy was a quality person.
'Death is freedom, life is a lesson'
Jonny Kennedy
Friday, December 16, 2005
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